Beyond PPI: People living with dementia in the driving seat

The Small Places

Some days expand your heart, mind and horizons; yesterday was that kind of day. And I want to share what I found out with you, so that your heart, mind and horizons can also grow larger.

I was privileged to be invited to a roundtable meeting by the Dementia Pioneers. This is a group of people living with dementia, who are researchers. They played a central role in a project that ran for the last five years and is just coming to an end, the Dementia Enquirers. The project developed a new approach to research that was led and controlled by people with dementia themselves.

Beyond ‘PPI’ and co-production

If you work in research, particularly health or care research, you have probably heard of ‘PPI’ – public and patient involvement. PPI is increasingly a core requirement of health research funding bodies, and what it entails can vary enormously –…

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