This page exists to support practitioners to work in partnership with carers and to achieve better outcomes. Much of the material in the other pages in Key Resources is also relevant to work with carers. You can find evidence supporting a focus on outcomes for carers in our Evidence section.
Tag Archives: carers
Workforce retention?
Support the workforce don’t blame the families
WORDS MATTER
- Legal literacy can only come from realising that every word matters. Hear here.
- Social work is a surreal sector. Don\’t we know it – not.
- Grey hair is good in social work. What goes round comes round.
- It is not legally true that social services is for everybody. Its legally untrue then?
- Providers can just stay firm and say \”no\”. If only
- You can\’t moan about fees if you keep taking them and hide the true consequences. Easy to say.
- Assessed eligible unmet need. It is people\’s carers who really give them choice. It is what carers are prepared to do. To work this out social workers need to be able to have grown up conversations for which they need to be legally literate. Who is doing carer\’s assessments? Anyone who provides any free support of practical or emotional use is a carer and eligible for assessment. Respite services are users services. Don\’t drive carers into assessment it is daft. Prevention makes more sense as only a few will give up. Necessary care what does it mean? There is no obligation to care. People cannot be made to care. Carers will not stop caring unless they think their loved ones will be alright.
- Three things that would make your life better – in priority order. Simple advice for being assessed
- People who know their rights will get more. Squeaky wheel.
- When care is being \”mediaevalised\” then the law matters. This applies beyond care.
- The care plan is the bedrock of the clients rights. You better believe it.
- Outcomes-based planning without inputs gives away clients rights. Its the workers – how many, how long, how competent – that matter.
- You can\’t charge for something you are not providing. Some will try it on though
- Local authorities cannot charge the user more than services costs. Charging is not to be used to redistribute wealth.
- People must not be left without support whilst a dispute is resolved. Shout it from the roof tops
- Just because it shocks you don\’t think it will shock a judge. Shocking
- Never say never…say usually. Words matter
- Social services managers need to be good at the law in order to be strategic leaders. Or know someone who is?
A Major Oxymoron
Vic Citarella remembers the days before there was social care
Carers are Individuals in the Act
Vic Citarella considers carers in the evaluation of Fulfilling Lives: supporting people with multiple needs projects
It is, perhaps, self-evident that people with complex needs frequently require correspondingly multiple and complex responses… wrote Henwood and Hudson in their 2009 CSCI study Keeping it personal. Now as Carers’ Week passes we have, in the Care Act, the strongest rights yet for carers. When put together with the duty of assessment for young carers, in the Children and Families Act, the legislative framework is suitably reflective of the very complexity identified for policy makers five years ago. It is a challenge for the Fulfilling Lives: supporting people with multiple needs evaluation to explore, understand and share how project investment resolves the problematic issues of real life complexity. Those involved in caring relationships shaped by homelessness, criminal behaviours, substance misuse and fragile mental health are potential benefiting contributors to making the most of that significant investment. The evaluation process has to identify both the benefits and contributions of carers to the success of Fulfilling Lives.
The Care Act refers to ‘individuals’ and so clearly covers both those with care needs and carers. It has a principle of well-being and includes duties to:
• Reduce carers’ needs for support (prevention)
• Provide information and advice (including financial advice)
• Assess carers on the appearance of need and that they may benefit from prevention, information or other support
• Apply eligibility criteria to carers’ services (yet to be defined in regulation)
• Provide services to meet carers’ assessed needs based on an entitlement
• Charge for carers’ support as applicable
• Prepare a support plan with the carer and help them choose how it is met
• Make sure there is no gap in services when people move home
• Promote diversity and quality in provision of carers’ services
There are also important new legal provisions regarding transition, delegated duties and safeguarding. The children’s legislation ensures that young carers have the same rights as adult carers based on the appearance of need.
The complexity kicks in when seeking to pinpoint who exactly is the person in need and who the carer is. Where the needs assessment applies and where the carers assessment? People, families, relationships, households and, indeed, communities characterised by multiple and complex need do not neatly fit into binary boxes. Such is the stuff of ‘gift’ relationships on which much of the system is founded. In fact relationships ebb and flow between cared for and carer, dependent and independent, care-giver and recipient, child and young carer – at one moment symbiotic and then parasitic, sometimes mutually beneficial and at others potentially harmful. That fluidity is equally a necessary feature of the evaluation process.
Whole System
Each Big Lottery, Fulfilling Lives project is measuring how well it is achieving its objectives. In so doing there is the overarching objective of providing tailored or bespoke support services that are personalised and unique to the needs of each individual. Those people will meet the given definition of complex need. The individual support will address all the issues faced from within the funded partnership. Because the legislation is about ‘individuals’ those people may or may not be in a caring relationship – the important thing is supporting them to tackle the complex need. Clearly a whole system approach to support is needed and equally to evaluation. That whether support is provided as a person in need or carer in need diminishes in the face of ensuring that the support system is built, maintained and becomes self sustaining – making change real.
The legislation allows for this in its founding principle of wellbeing, in its emphasis on prevention and its recognition of the individual with ‘an appearance’ of need whoever they are. Similarly the evaluation allows for this in giving even weight to input, activity, output and outcome. It uses case studies and formative approaches to learning as well as the more quantitative techniques – both are important. The research logic chain refers to individuals with multiple and complex needs rather than service users; just like with people being cared for and carers, it is not an either/or when it comes to the Fulfilling Lives evaluation. It is about capturing what works, identifying why and how so that others may learn and replicate success.
First published on the Fulfilling Livesblogging site
It’s Complicated – the Care Act and Multiple Needs
First published on Fulfilling Lives on May 28, 2014
The parliamentary ‘ping-pong’ is over, amendments agreed between the Lords and the Commons and the Care Act has Royal Assent. Everyone – local authorities, NHS bodies, public, voluntary and private organisations – are busy assessing the potential impact of the new law on what they do. How will it help/hinder; what are the gaps; what are the costs; what will we do now and what can wait; which clauses take priority; who is going to do what and how will we cope? The questions go on and the project and risk management training is put to the test. Projects will be making similar judgements themselves and the national evaluation team too will be considering how it might impact on our work on Fulfilling Lives; Supporting people with multiple needs.
Thinking positively, it is thus timely for a blog on the subject of the Care Act. If you are reading this then you are probably on the news and events section of our website dedicated to the national evaluation of Big Lottery Fund’s Fulfilling Lives; Supporting people with multiple needs. When you are done reading this, please do take a moment to look around the rest of the site and glean some more information about the anticipations of those involved.
It is certainly true that the Act, is a massive piece of legislation – both consolidating and creating law. For those of you seeking an understanding of the fledgling legislation see the government‘s explanatory notes. If you want to explore the extensive impact on those with multiple needs and their families then this and subsequent blogs will provide some thoughts and signposts that are intended to creatively provoke.
This is not simple stuff and the government has already published 19 factsheets and a glossary on the Act. It is not something that can be dealt with in a single blog. Even honing in on the Fulfilling Lives; Supporting people with multiple needs initiative doesn’t make things more straightforward. There are not many parts of the Act without significance to the initiative. To get an idea of the scale of effort involved have a look at the recent Adfam policy briefing. This, one of many that comes from an internet search, has the particular value of recognising that it is not just the Care Act but the Children and Families Act as well that requires attention.
So it’s complicated. But this blogger has a plan to trigger thinking about the Care Act. That plan has two elements which will feature in each blog:
• First, to share and comment on the approach of local authorities and other public bodies
•Second, to support learning and evaluation around the Big Lottery Fund’s Fulfilling Lives; Supporting people with multiple needs initiative
The blog plan will prioritise what is new in law and practice, alongside those aspects of the Act that are new in law but not in policy. Here we will focus particularly on considering how the Act might affect the national evaluation. The top half-dozen items of interest are:
1. Carer’s Assessments – clause 10
2. Eligibility – clause 13
3. Cap on care costs – clauses 15 and 16
4. Independent Personal Budget – clause 28
5. Care Account – clause 29
6. Advocacy – clauses 68 and 69
As an illustration, for one local authority, these are all in a project plan that contains 45 such high level items of which the risk RAG rating has 13 in the red – or lots of work to do and not yet ready – category. Their agenda seems like a worthy blogging schedule with the next being about Carers and Multiple Needs – what does the Care Act offer?